Find resources and support through this Facebook page by the Carcinoid Cancer Foundation.
The Lois Merrill Foundation
Share a Blog
Writing about your Carcinoid journey can be therapeutic and reading the experiences of others comforting. Here are some blogs that's we've found from people who are sharing their Carcinoid experiences. If you have a blog that you'd like for us to include, just let us know.
- Cy Ball : http://cyrilfb.com/carcinoid-cancer-story/
- Brian's Carcinoid Battle: http://fightcarcinoid.com/
- Lucys Noid Blog : http://lucysnoidblog.blogspot.com/
- Tracy Krulick's Blog: http://tracykrulik.com/
PRRT
OTHER RESOURCES
- Food Triggers : http://www.heartlandcarcinoids.org/foods__nutrition_for_nets/food_amine_content_chart
Thanks for including my blog in your list. I suggest that you also include Tracy Krulik's blog: http://tracykrulik.com/ called I Have Cancer, And I've Never Felt Better.
ReplyDeleteCy,
ReplyDeleteThank you for sharing! I will get this added to our list. Please don't hesitate to let us know of anything you find. Our family is just beginning this journey with my Dad, so we are in absorption mode ... reading everything we can!
Sandy
Dear Larry & Connie! Hope your flushing zebra bash was a resounding success!!!
ReplyDeleteWould love to hear more about your trip to Basel! I do the website for the Heartland Carcinoid/NETs Support Group and was tickled that you posted a link to our website! Thanks for helping us get the word out about carcinoid and neuroendocrine tumors! Have an idea that I would like to run by you! Can you contact me in the near future? Thanks again and I hope the Bash helped a bunch with the costs of the Basel treatments! Dianna Boomershine, Heartland Carcinoid/NETs Support Group, Columbia, MO email: heartland_carcinoids@yahoo.com